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Malan overgrowth syndrome

Just diagnosed with Malan overgrowth syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Malan overgrowth syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Malan overgrowth syndrome hub →

Overview

Malan overgrowth syndrome is a rare condition. Also known as Sotos syndrome 2. Tomeko brings together the specialists, research, clinical trials, treatments and community for Malan overgrowth syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:420179 · OMIM 614753 · ICD-10 Q87.3 · GARD 0013811

Find care for Malan overgrowth syndrome

Authoritative references for Malan overgrowth syndrome

Common questions

I was just diagnosed with Malan overgrowth syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Malan overgrowth syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Malan overgrowth syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Malan overgrowth syndrome, filtered to your area.

Are there clinical trials for Malan overgrowth syndrome?

Tomeko shows live, recruiting studies for Malan overgrowth syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com