You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Lipodystrophy due to peptidic growth factors deficiency, look for clinical trials, and connect with others living with it — all in one place.
Open the full Lipodystrophy due to peptidic growth factors deficiency hub →Lipodystrophy due to peptidic growth factors deficiency is a rare condition. Also known as Combined insulin, insulin-like growth factor 1 (IGF1) and epidermal growth factor (EGF) deficiency, Hoepffner-Dreyer-Reimers syndrome, Werner-like syndrome due to combined growth factor deficiency. Tomeko brings together the specialists, research, clinical trials, treatments and community for Lipodystrophy due to peptidic growth factors deficiency so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1979 · OMIM 233805 · ICD-10 E88.1 · GARD 0012604
Start by learning the basics from an authoritative source, find a specialist or center that sees Lipodystrophy due to peptidic growth factors deficiency, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Lipodystrophy due to peptidic growth factors deficiency, filtered to your area.
Tomeko shows live, recruiting studies for Lipodystrophy due to peptidic growth factors deficiency from ClinicalTrials.gov on the hub.