You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Lewis-Sumner syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Lewis-Sumner syndrome hub →Lewis-Sumner syndrome is a rare condition. Also known as MADSAM, Multifocal acquired demyelinating sensory and motor neuropathy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Lewis-Sumner syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:48162 · ICD-10 G61.8 · GARD 0013070
Start by learning the basics from an authoritative source, find a specialist or center that sees Lewis-Sumner syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Lewis-Sumner syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Lewis-Sumner syndrome from ClinicalTrials.gov on the hub.