You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Lethal multiple pterygium syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Lethal multiple pterygium syndrome hub →Lethal multiple pterygium syndrome is a rare condition. Also known as LMPS, Autosomal recessive lethal multiple pterygium syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Lethal multiple pterygium syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:33108 · OMIM 253290, 619334 · ICD-10 Q79.8 · GARD 0003834
Start by learning the basics from an authoritative source, find a specialist or center that sees Lethal multiple pterygium syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Lethal multiple pterygium syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Lethal multiple pterygium syndrome from ClinicalTrials.gov on the hub.