You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Leigh syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Leigh syndrome hub →Leigh syndrome is a rare condition. Also known as Infantile subacute necrotizing encephalopathy, Leigh disease. Tomeko brings together the specialists, research, clinical trials, treatments and community for Leigh syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:506 · OMIM 256000 · ICD-10 G31.8 · GARD 0006877
Start by learning the basics from an authoritative source, find a specialist or center that sees Leigh syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Leigh syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Leigh syndrome from ClinicalTrials.gov on the hub.