You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Leber plus disease, look for clinical trials, and connect with others living with it — all in one place.
Open the full Leber plus disease hub →Leber plus disease is a rare condition. Also known as LHON plus disease. Tomeko brings together the specialists, research, clinical trials, treatments and community for Leber plus disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:99718 · OMIM 165200, 500001 · ICD-10 H47.2 · GARD 0008476
Start by learning the basics from an authoritative source, find a specialist or center that sees Leber plus disease, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Leber plus disease, filtered to your area.
Tomeko shows live, recruiting studies for Leber plus disease from ClinicalTrials.gov on the hub.