You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Leber optic atrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Leber optic atrophy hub →Leber optic atrophy is a rare condition. Also known as LHON, Leber optic atrophy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Leber optic atrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:104 · OMIM 308905, 535000, 619382 · ICD-10 H47.2 · GARD 0006870
Start by learning the basics from an authoritative source, find a specialist or center that sees Leber optic atrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Leber optic atrophy, filtered to your area.
Tomeko shows live, recruiting studies for Leber optic atrophy from ClinicalTrials.gov on the hub.