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Late-onset junctional epidermolysis bullosa

Just diagnosed with Late-onset junctional epidermolysis bullosa?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Late-onset junctional epidermolysis bullosa, look for clinical trials, and connect with others living with it — all in one place.

Open the full Late-onset junctional epidermolysis bullosa hub →

Overview

Late-onset junctional epidermolysis bullosa is a rare condition. Also known as Epidermolysis bullosa progressiva, JEB-lo, Late-onset JEB. Tomeko brings together the specialists, research, clinical trials, treatments and community for Late-onset junctional epidermolysis bullosa so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:79406 · OMIM 619787 · ICD-10 Q81.8 · GARD 0012921

Find care for Late-onset junctional epidermolysis bullosa

Authoritative references for Late-onset junctional epidermolysis bullosa

Common questions

I was just diagnosed with Late-onset junctional epidermolysis bullosa — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Late-onset junctional epidermolysis bullosa, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Late-onset junctional epidermolysis bullosa?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Late-onset junctional epidermolysis bullosa, filtered to your area.

Are there clinical trials for Late-onset junctional epidermolysis bullosa?

Tomeko shows live, recruiting studies for Late-onset junctional epidermolysis bullosa from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com