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King Denborough syndrome

Just diagnosed with King Denborough syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees King Denborough syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full King Denborough syndrome hub →

Overview

King Denborough syndrome is a rare condition. Also known as Koussef-Nichols syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for King Denborough syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:99741 · OMIM 619542 · ICD-10 G71.2 · GARD 0008433

Find care for King Denborough syndrome

Authoritative references for King Denborough syndrome

Common questions

I was just diagnosed with King Denborough syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees King Denborough syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for King Denborough syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat King Denborough syndrome, filtered to your area.

Are there clinical trials for King Denborough syndrome?

Tomeko shows live, recruiting studies for King Denborough syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com