You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Kindler syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Kindler syndrome hub →Kindler syndrome is a rare condition. Also known as Congenital bullous poikiloderma, Kindler syndrome, Poikiloderma of Kindler. Tomeko brings together the specialists, research, clinical trials, treatments and community for Kindler syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2908 · OMIM 173650 · ICD-10 Q81.8 · GARD 0004391
Start by learning the basics from an authoritative source, find a specialist or center that sees Kindler syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Kindler syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Kindler syndrome from ClinicalTrials.gov on the hub.