You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Kennedy disease, look for clinical trials, and connect with others living with it — all in one place.
Open the full Kennedy disease hub →Kennedy disease is a rare condition. Also known as SBMA, SMAX1, X-linked BSMA, X-linked bulbospinal amyotrophy, X-linked bulbospinal muscular atrophy, X-linked spinal and bulbar muscular atrophy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Kennedy disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:481 · OMIM 313200 · ICD-10 G12.2 · GARD 0006818
Start by learning the basics from an authoritative source, find a specialist or center that sees Kennedy disease, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Kennedy disease, filtered to your area.
Tomeko shows live, recruiting studies for Kennedy disease from ClinicalTrials.gov on the hub.