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Keipert syndrome

Just diagnosed with Keipert syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Keipert syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Keipert syndrome hub →

Overview

Keipert syndrome is a rare condition. Also known as Nasodigitoacoustic syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Keipert syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:2662 · OMIM 301026 · ICD-10 Q87.0 · GARD 0000267

Find care for Keipert syndrome

Authoritative references for Keipert syndrome

Common questions

I was just diagnosed with Keipert syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Keipert syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Keipert syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Keipert syndrome, filtered to your area.

Are there clinical trials for Keipert syndrome?

Tomeko shows live, recruiting studies for Keipert syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com