You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Junctional epidermolysis bullosa gravis of Herlitz, look for clinical trials, and connect with others living with it — all in one place.
Open the full Junctional epidermolysis bullosa gravis of Herlitz hub →Junctional epidermolysis bullosa gravis of Herlitz is a rare condition. Also known as Epidermolysis bullosa letalis, JEB-H, Junctional epidermolysis bullosa generalisata gravis, Junctional epidermolysis bullosa, Herlitz type, Junctional epidermolysis bullosa, Herlitz-Pearson type, Severe generalized JEB. Tomeko brings together the specialists, research, clinical trials, treatments and community for Junctional epidermolysis bullosa gravis of Herlitz so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:79404 · OMIM 226700, 619786 · ICD-10 Q81.1 · GARD 0002153
Start by learning the basics from an authoritative source, find a specialist or center that sees Junctional epidermolysis bullosa gravis of Herlitz, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Junctional epidermolysis bullosa gravis of Herlitz, filtered to your area.
Tomeko shows live, recruiting studies for Junctional epidermolysis bullosa gravis of Herlitz from ClinicalTrials.gov on the hub.