You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Intermediate DEND syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Intermediate DEND syndrome hub →Intermediate DEND syndrome is a rare condition. Also known as Developmental delay-epilepsy-neonatal diabetes syndrome, intermediate form. Tomeko brings together the specialists, research, clinical trials, treatments and community for Intermediate DEND syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:99989 · ICD-10 P70.2 · GARD 0019724
Start by learning the basics from an authoritative source, find a specialist or center that sees Intermediate DEND syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Intermediate DEND syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Intermediate DEND syndrome from ClinicalTrials.gov on the hub.