You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Infantile onset spinocerebellar ataxia, look for clinical trials, and connect with others living with it — all in one place.
Open the full Infantile onset spinocerebellar ataxia hub →Infantile onset spinocerebellar ataxia is a rare condition. Also known as IOSCA, Ohaha syndrome, Ophthalmoplegia-hypotonia-ataxia-hypoacusis-athetosis syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Infantile onset spinocerebellar ataxia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1186 · OMIM 271245 · ICD-10 G11.1 · GARD 0004062
Start by learning the basics from an authoritative source, find a specialist or center that sees Infantile onset spinocerebellar ataxia, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Infantile onset spinocerebellar ataxia, filtered to your area.
Tomeko shows live, recruiting studies for Infantile onset spinocerebellar ataxia from ClinicalTrials.gov on the hub.