You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Infantile glycine encephalopathy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Infantile glycine encephalopathy hub →Infantile glycine encephalopathy is a rare condition. Also known as Infantile NKH, Infantile non-ketotic hyperglycinemia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Infantile glycine encephalopathy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:289860 · OMIM 605899, 620398, 620423 · ICD-10 E72.5 · GARD 0017333
Start by learning the basics from an authoritative source, find a specialist or center that sees Infantile glycine encephalopathy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Infantile glycine encephalopathy, filtered to your area.
Tomeko shows live, recruiting studies for Infantile glycine encephalopathy from ClinicalTrials.gov on the hub.