You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Inclusion body myopathy with Paget disease of bone and frontotemporal dementia, look for clinical trials, and connect with others living with it — all in one place.
Open the full Inclusion body myopathy with Paget disease of bone and frontotemporal dementia hub →Inclusion body myopathy with Paget disease of bone and frontotemporal dementia is a rare condition. Also known as IBMPFD, Limb-girdle muscular dystrophy with Paget disease of bone, Pagetoid amyotrophic lateral sclerosis, Pagetoid neuroskeletal syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Inclusion body myopathy with Paget disease of bone and frontotemporal dementia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:52430 · OMIM 167320, 615422, 615424 · ICD-10 G71.8 · GARD 0010899
Start by learning the basics from an authoritative source, find a specialist or center that sees Inclusion body myopathy with Paget disease of bone and frontotemporal dementia, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Inclusion body myopathy with Paget disease of bone and frontotemporal dementia, filtered to your area.
Tomeko shows live, recruiting studies for Inclusion body myopathy with Paget disease of bone and frontotemporal dementia from ClinicalTrials.gov on the hub.