You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Imerslund-Grasbeck syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Imerslund-Grasbeck syndrome hub →Imerslund-Grasbeck syndrome is a rare condition. Also known as Familial megaloblastic anemia, Selective cobalamin malabsorption with proteinuria. Tomeko brings together the specialists, research, clinical trials, treatments and community for Imerslund-Grasbeck syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:35858 · OMIM 261100, 618882 · ICD-10 D51.1 · GARD 0007006
Start by learning the basics from an authoritative source, find a specialist or center that sees Imerslund-Grasbeck syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Imerslund-Grasbeck syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Imerslund-Grasbeck syndrome from ClinicalTrials.gov on the hub.