You are not alone. Here is where to start: learn the basics, find a specialist or center that sees IMAGe syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full IMAGe syndrome hub →IMAGe syndrome is a rare condition. Also known as Intrauterine growth retardation-metaphyseal dysplasia-adrenal hypoplasia congenita-genital anomalies syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for IMAGe syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:85173 · OMIM 614732, 618336 · ICD-10 Q87.1 · GARD 0012312
Start by learning the basics from an authoritative source, find a specialist or center that sees IMAGe syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat IMAGe syndrome, filtered to your area.
Tomeko shows live, recruiting studies for IMAGe syndrome from ClinicalTrials.gov on the hub.