You are not alone. Here is where to start: learn the basics, find a specialist or center that sees IFAP syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full IFAP syndrome hub →IFAP syndrome is a rare condition. Also known as IFAP syndrome, Ichthyosis follicularis-atrichia-photophobia syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for IFAP syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2273 · OMIM 308205, 619016 · ICD-10 Q80.8 · GARD 0002952
Start by learning the basics from an authoritative source, find a specialist or center that sees IFAP syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat IFAP syndrome, filtered to your area.
Tomeko shows live, recruiting studies for IFAP syndrome from ClinicalTrials.gov on the hub.