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Ichthyosis prematurity syndrome

Just diagnosed with Ichthyosis prematurity syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Ichthyosis prematurity syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Ichthyosis prematurity syndrome hub →

Overview

Ichthyosis prematurity syndrome is a rare condition. Also known as Congenital ichthyosis type 4, IPS. Tomeko brings together the specialists, research, clinical trials, treatments and community for Ichthyosis prematurity syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:88621 · OMIM 608649 · ICD-10 Q80.8 · GARD 0009886

Find care for Ichthyosis prematurity syndrome

Authoritative references for Ichthyosis prematurity syndrome

Common questions

I was just diagnosed with Ichthyosis prematurity syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Ichthyosis prematurity syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Ichthyosis prematurity syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Ichthyosis prematurity syndrome, filtered to your area.

Are there clinical trials for Ichthyosis prematurity syndrome?

Tomeko shows live, recruiting studies for Ichthyosis prematurity syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com