You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Ichthyosis hystrix of Curth-Macklin, look for clinical trials, and connect with others living with it — all in one place.
Open the full Ichthyosis hystrix of Curth-Macklin hub →Ichthyosis hystrix of Curth-Macklin is a rare condition. Also known as Ichthyosis hystrix, Curth-Macklin type. Tomeko brings together the specialists, research, clinical trials, treatments and community for Ichthyosis hystrix of Curth-Macklin so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:79503 · OMIM 146590 · ICD-10 Q80.8 · GARD 0002954
Start by learning the basics from an authoritative source, find a specialist or center that sees Ichthyosis hystrix of Curth-Macklin, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Ichthyosis hystrix of Curth-Macklin, filtered to your area.
Tomeko shows live, recruiting studies for Ichthyosis hystrix of Curth-Macklin from ClinicalTrials.gov on the hub.