You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hutchinson-Gilford syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Hutchinson-Gilford syndrome hub →Hutchinson-Gilford syndrome is a rare condition. Also known as HGPS, Progeria. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hutchinson-Gilford syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:740 · OMIM 176670 · ICD-10 E34.8 · GARD 0007467
Start by learning the basics from an authoritative source, find a specialist or center that sees Hutchinson-Gilford syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hutchinson-Gilford syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Hutchinson-Gilford syndrome from ClinicalTrials.gov on the hub.