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Human prion disease

Just diagnosed with Human prion disease?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Human prion disease, look for clinical trials, and connect with others living with it — all in one place.

Open the full Human prion disease hub →

Overview

Human prion disease is a rare condition. Also known as TSE, Transmissible spongiform encephalopathy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Human prion disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:56970 · GARD 0018851

Find care for Human prion disease

Authoritative references for Human prion disease

Common questions

I was just diagnosed with Human prion disease — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Human prion disease, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Human prion disease?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Human prion disease, filtered to your area.

Are there clinical trials for Human prion disease?

Tomeko shows live, recruiting studies for Human prion disease from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com