You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Heritable pulmonary arterial hypertension, look for clinical trials, and connect with others living with it — all in one place.
Open the full Heritable pulmonary arterial hypertension hub →Heritable pulmonary arterial hypertension is a rare condition. Also known as FPAH, Familial pulmonary arterial hypertension, HPAH, Hereditary pulmonary arterial hypertension. Tomeko brings together the specialists, research, clinical trials, treatments and community for Heritable pulmonary arterial hypertension so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:275777 · OMIM 178600, 615342 · ICD-10 I27.0 · GARD 0011914
Start by learning the basics from an authoritative source, find a specialist or center that sees Heritable pulmonary arterial hypertension, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Heritable pulmonary arterial hypertension, filtered to your area.
Tomeko shows live, recruiting studies for Heritable pulmonary arterial hypertension from ClinicalTrials.gov on the hub.