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Hereditary sensory neuropathy-deafness-dementia syndrome

Just diagnosed with Hereditary sensory neuropathy-deafness-dementia syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hereditary sensory neuropathy-deafness-dementia syndrome, look for clinical trials, and connect with others living with it — all in one place.

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Overview

Hereditary sensory neuropathy-deafness-dementia syndrome is a rare condition. Also known as HSAN1E, HSN1E, Hereditary sensory neuropathy-sensorineural hearing loss-dementia syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hereditary sensory neuropathy-deafness-dementia syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:456318 · OMIM 614116 · ICD-10 G60.8 · GARD 0011927

Find care for Hereditary sensory neuropathy-deafness-dementia syndrome

Authoritative references for Hereditary sensory neuropathy-deafness-dementia syndrome

Common questions

I was just diagnosed with Hereditary sensory neuropathy-deafness-dementia syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Hereditary sensory neuropathy-deafness-dementia syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Hereditary sensory neuropathy-deafness-dementia syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hereditary sensory neuropathy-deafness-dementia syndrome, filtered to your area.

Are there clinical trials for Hereditary sensory neuropathy-deafness-dementia syndrome?

Tomeko shows live, recruiting studies for Hereditary sensory neuropathy-deafness-dementia syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com