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Hereditary photodermatosis

Just diagnosed with Hereditary photodermatosis?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hereditary photodermatosis, look for clinical trials, and connect with others living with it — all in one place.

Open the full Hereditary photodermatosis hub →

Overview

Hereditary photodermatosis is a rare condition. Also known as Genetic skin photosensitivity, Photogenodermatosis. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hereditary photodermatosis so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:183490 · GARD 0020277

Find care for Hereditary photodermatosis

Authoritative references for Hereditary photodermatosis

Common questions

I was just diagnosed with Hereditary photodermatosis — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Hereditary photodermatosis, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Hereditary photodermatosis?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hereditary photodermatosis, filtered to your area.

Are there clinical trials for Hereditary photodermatosis?

Tomeko shows live, recruiting studies for Hereditary photodermatosis from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com