You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hereditary pheochromocytoma and paraganglioma, look for clinical trials, and connect with others living with it — all in one place.
Open the full Hereditary pheochromocytoma and paraganglioma hub →Hereditary pheochromocytoma and paraganglioma is a rare condition. Also known as Familial pheochromocytoma-paraganglioma. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hereditary pheochromocytoma and paraganglioma so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:29072 · OMIM 115310, 168000, 171300 · ICD-10 C74.1, C75.5, D35.0 · GARD 0011984
Start by learning the basics from an authoritative source, find a specialist or center that sees Hereditary pheochromocytoma and paraganglioma, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hereditary pheochromocytoma and paraganglioma, filtered to your area.
Tomeko shows live, recruiting studies for Hereditary pheochromocytoma and paraganglioma from ClinicalTrials.gov on the hub.