You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hereditary liability to pressure palsies, look for clinical trials, and connect with others living with it — all in one place.
Open the full Hereditary liability to pressure palsies hub →Hereditary liability to pressure palsies is a rare condition. Also known as Current pressure-sensitive neuropathy, HNPP, Heterozygous microdeletion 17p11.2p12, Potato-grubbing palsy, Tomaculous neuropathy, Tulip-bulb digger's palsy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hereditary liability to pressure palsies so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:640 · OMIM 162500 · ICD-10 G60.0 · GARD 0005221
Start by learning the basics from an authoritative source, find a specialist or center that sees Hereditary liability to pressure palsies, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hereditary liability to pressure palsies, filtered to your area.
Tomeko shows live, recruiting studies for Hereditary liability to pressure palsies from ClinicalTrials.gov on the hub.