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Hereditary leiomyomatosis and renal cell cancer

Just diagnosed with Hereditary leiomyomatosis and renal cell cancer?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hereditary leiomyomatosis and renal cell cancer, look for clinical trials, and connect with others living with it — all in one place.

Open the full Hereditary leiomyomatosis and renal cell cancer hub →

Overview

Hereditary leiomyomatosis and renal cell cancer is a rare condition. Also known as Familial leiomyomatosis and renal cell cancer, Familial leiomyomatosis cutis et uteri, Familial leiomyomatosis with renal carcinoma, Familial multiple cutaneous leiomyomas, HLRCC, Hereditary leiomyomatosis, Hereditary leiomyomatosis with renal carcinoma, Hereditary multiple cutaneous leiomyomas. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hereditary leiomyomatosis and renal cell cancer so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:523 · OMIM 150800 · ICD-10 C64 · GARD 0010096

Find care for Hereditary leiomyomatosis and renal cell cancer

Authoritative references for Hereditary leiomyomatosis and renal cell cancer

Common questions

I was just diagnosed with Hereditary leiomyomatosis and renal cell cancer — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Hereditary leiomyomatosis and renal cell cancer, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Hereditary leiomyomatosis and renal cell cancer?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hereditary leiomyomatosis and renal cell cancer, filtered to your area.

Are there clinical trials for Hereditary leiomyomatosis and renal cell cancer?

Tomeko shows live, recruiting studies for Hereditary leiomyomatosis and renal cell cancer from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com