You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hereditary hollow viscus myopathy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Hereditary hollow viscus myopathy hub →Hereditary hollow viscus myopathy is a rare condition. Also known as Familial hollow visceral myopathy, Hereditary hollow visceral myopathy, Megaduodenum and/or megacystis. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hereditary hollow viscus myopathy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2604 · OMIM 155310, 619350 · ICD-10 K56.0 · GARD 0003443
Start by learning the basics from an authoritative source, find a specialist or center that sees Hereditary hollow viscus myopathy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hereditary hollow viscus myopathy, filtered to your area.
Tomeko shows live, recruiting studies for Hereditary hollow viscus myopathy from ClinicalTrials.gov on the hub.