You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hereditary hemorrhagic telangiectasia, look for clinical trials, and connect with others living with it — all in one place.
Open the full Hereditary hemorrhagic telangiectasia hub →Hereditary hemorrhagic telangiectasia is a rare condition. Also known as HHT, Rendu-Osler disease, Rendu-Osler-Weber disease. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hereditary hemorrhagic telangiectasia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:774 · OMIM 175050, 187300, 600376 · ICD-10 I78.0 · GARD 0006626
Start by learning the basics from an authoritative source, find a specialist or center that sees Hereditary hemorrhagic telangiectasia, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hereditary hemorrhagic telangiectasia, filtered to your area.
Tomeko shows live, recruiting studies for Hereditary hemorrhagic telangiectasia from ClinicalTrials.gov on the hub.