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Hereditary elliptocytosis

Just diagnosed with Hereditary elliptocytosis?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hereditary elliptocytosis, look for clinical trials, and connect with others living with it — all in one place.

Open the full Hereditary elliptocytosis hub →

Overview

Hereditary elliptocytosis is a rare condition. Also known as HE. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hereditary elliptocytosis so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:288 · OMIM 130600, 235370, 611804 · ICD-10 D58.1 · GARD 0006621

Find care for Hereditary elliptocytosis

Authoritative references for Hereditary elliptocytosis

Common questions

I was just diagnosed with Hereditary elliptocytosis — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Hereditary elliptocytosis, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Hereditary elliptocytosis?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hereditary elliptocytosis, filtered to your area.

Are there clinical trials for Hereditary elliptocytosis?

Tomeko shows live, recruiting studies for Hereditary elliptocytosis from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com