You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hereditary cavernous hemangioma of brain, look for clinical trials, and connect with others living with it — all in one place.
Open the full Hereditary cavernous hemangioma of brain hub →Hereditary cavernous hemangioma of brain is a rare condition. Also known as Familial brain cavernous angioma, Familial cerebral cavernoma, Hereditary brain cavernous angioma, Hereditary cerebral cavernoma, Hereditary cerebral cavernous malformation. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hereditary cavernous hemangioma of brain so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:221061 · OMIM 116860, 603284, 603285 · ICD-10 Q28.3 · GARD 0013641
Start by learning the basics from an authoritative source, find a specialist or center that sees Hereditary cavernous hemangioma of brain, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hereditary cavernous hemangioma of brain, filtered to your area.
Tomeko shows live, recruiting studies for Hereditary cavernous hemangioma of brain from ClinicalTrials.gov on the hub.