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Hereditary benign telangiectasia

Just diagnosed with Hereditary benign telangiectasia?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hereditary benign telangiectasia, look for clinical trials, and connect with others living with it — all in one place.

Open the full Hereditary benign telangiectasia hub →

Overview

Hereditary benign telangiectasia is a rare condition. Also known as GET. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hereditary benign telangiectasia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:280774 · ICD-10 I78.0 · GARD 0021087

Find care for Hereditary benign telangiectasia

Authoritative references for Hereditary benign telangiectasia

Common questions

I was just diagnosed with Hereditary benign telangiectasia — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Hereditary benign telangiectasia, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Hereditary benign telangiectasia?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hereditary benign telangiectasia, filtered to your area.

Are there clinical trials for Hereditary benign telangiectasia?

Tomeko shows live, recruiting studies for Hereditary benign telangiectasia from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com