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Hereditary angioneurotic edema

Just diagnosed with Hereditary angioneurotic edema?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hereditary angioneurotic edema, look for clinical trials, and connect with others living with it — all in one place.

Open the full Hereditary angioneurotic edema hub →

Overview

Hereditary angioneurotic edema is a rare condition. Also known as Familial angioneurotic edema, HAE, Hereditary angioneurotic edema, Hereditary bradykinine-induced angioedema, Hereditary non histamine-induced angioedema. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hereditary angioneurotic edema so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:91378 · OMIM 106100, 610618, 619360 · GARD 0005979

Find care for Hereditary angioneurotic edema

Authoritative references for Hereditary angioneurotic edema

Common questions

I was just diagnosed with Hereditary angioneurotic edema — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Hereditary angioneurotic edema, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Hereditary angioneurotic edema?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hereditary angioneurotic edema, filtered to your area.

Are there clinical trials for Hereditary angioneurotic edema?

Tomeko shows live, recruiting studies for Hereditary angioneurotic edema from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com