You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hennekam lymphangiectasia-lymphedema syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Hennekam lymphangiectasia-lymphedema syndrome hub →Hennekam lymphangiectasia-lymphedema syndrome is a rare condition. Also known as Lymphedema-lymphangiectasia-intellectual disability syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hennekam lymphangiectasia-lymphedema syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2136 · OMIM 235510, 616006, 618154 · ICD-10 Q87.8 · GARD 0003318
Start by learning the basics from an authoritative source, find a specialist or center that sees Hennekam lymphangiectasia-lymphedema syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hennekam lymphangiectasia-lymphedema syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Hennekam lymphangiectasia-lymphedema syndrome from ClinicalTrials.gov on the hub.