You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hemoglobin H disease, look for clinical trials, and connect with others living with it — all in one place.
Open the full Hemoglobin H disease hub →Hemoglobin H disease is a rare condition. Also known as Alpha-thalassemia intermedia, HbH disease. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hemoglobin H disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:93616 · OMIM 613978 · ICD-10 D56.0 · GARD 0016829
Start by learning the basics from an authoritative source, find a specialist or center that sees Hemoglobin H disease, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hemoglobin H disease, filtered to your area.
Tomeko shows live, recruiting studies for Hemoglobin H disease from ClinicalTrials.gov on the hub.