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Hemimegalencephaly

Just diagnosed with Hemimegalencephaly?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hemimegalencephaly, look for clinical trials, and connect with others living with it — all in one place.

Open the full Hemimegalencephaly hub →

Overview

Hemimegalencephaly is a rare condition. Also known as Unilateral megalencephaly. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hemimegalencephaly so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:99802 · ICD-10 Q04.5 · GARD 0002637

Find care for Hemimegalencephaly

Authoritative references for Hemimegalencephaly

Common questions

I was just diagnosed with Hemimegalencephaly — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Hemimegalencephaly, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Hemimegalencephaly?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hemimegalencephaly, filtered to your area.

Are there clinical trials for Hemimegalencephaly?

Tomeko shows live, recruiting studies for Hemimegalencephaly from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com