You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hecht syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Hecht syndrome hub →Hecht syndrome is a rare condition. Also known as Distal arthrogryposis type 7, Dutch-Kentucky syndrome, Hecht syndrome, Hecht-Beals syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hecht syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:3377 · OMIM 158300 · ICD-10 Q68.8 · GARD 0002621
Start by learning the basics from an authoritative source, find a specialist or center that sees Hecht syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hecht syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Hecht syndrome from ClinicalTrials.gov on the hub.