You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hb SS disease, look for clinical trials, and connect with others living with it — all in one place.
Open the full Hb SS disease hub →Hb SS disease is a rare condition. Also known as Homozygous hemoglobin S, Homozygous sickle cell anemia SS. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hb SS disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:232 · OMIM 603903 · ICD-10 D57.0, D57.1, D57.2 · GARD 0008614
Start by learning the basics from an authoritative source, find a specialist or center that sees Hb SS disease, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hb SS disease, filtered to your area.
Tomeko shows live, recruiting studies for Hb SS disease from ClinicalTrials.gov on the hub.