You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Hajdu-Cheney syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Hajdu-Cheney syndrome hub →Hajdu-Cheney syndrome is a rare condition. Also known as Acroosteolysis dominant type, Acroosteolysis with osteoporosis and changes in skull and mandible, Arthrodentoosteodysplasia, Cheney syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Hajdu-Cheney syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:955 · OMIM 102400, 102500 · ICD-10 M89.5 · GARD 0000508
Start by learning the basics from an authoritative source, find a specialist or center that sees Hajdu-Cheney syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Hajdu-Cheney syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Hajdu-Cheney syndrome from ClinicalTrials.gov on the hub.