You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Haddad syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Haddad syndrome hub →Haddad syndrome is a rare condition. Also known as Congenital central alveolar hypoventilation-Hirschsprung disease syndrome, Ondine-Hirschsprung disease, Ondine-Hirschsprung syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Haddad syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:99803 · OMIM 209880 · ICD-10 G47.3 · GARD 0016909
Start by learning the basics from an authoritative source, find a specialist or center that sees Haddad syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Haddad syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Haddad syndrome from ClinicalTrials.gov on the hub.