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Growth hormone insensitivity syndrome

Just diagnosed with Growth hormone insensitivity syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Growth hormone insensitivity syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Growth hormone insensitivity syndrome hub →

Overview

Growth hormone insensitivity syndrome is a rare condition. Also known as GHIS, Short stature due to a defect in growth hormone receptor or post-receptor pathway. Tomeko brings together the specialists, research, clinical trials, treatments and community for Growth hormone insensitivity syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:181393 · GARD 0003924

Find care for Growth hormone insensitivity syndrome

Authoritative references for Growth hormone insensitivity syndrome

Common questions

I was just diagnosed with Growth hormone insensitivity syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Growth hormone insensitivity syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Growth hormone insensitivity syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Growth hormone insensitivity syndrome, filtered to your area.

Are there clinical trials for Growth hormone insensitivity syndrome?

Tomeko shows live, recruiting studies for Growth hormone insensitivity syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com