You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Growth delay due to insulin-like growth factor type 1 deficiency, look for clinical trials, and connect with others living with it — all in one place.
Open the full Growth delay due to insulin-like growth factor type 1 deficiency hub →Growth delay due to insulin-like growth factor type 1 deficiency is a rare condition. Also known as Growth delay-deafness-intellectual disability syndrome, Growth delay-hearing loss-intellectual disability syndrome, IGF-1 deficiency, Primary insulin-like growth factor deficiency. Tomeko brings together the specialists, research, clinical trials, treatments and community for Growth delay due to insulin-like growth factor type 1 deficiency so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:73272 · OMIM 608747 · ICD-10 E34.3 · GARD 0010627
Start by learning the basics from an authoritative source, find a specialist or center that sees Growth delay due to insulin-like growth factor type 1 deficiency, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Growth delay due to insulin-like growth factor type 1 deficiency, filtered to your area.
Tomeko shows live, recruiting studies for Growth delay due to insulin-like growth factor type 1 deficiency from ClinicalTrials.gov on the hub.