You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Grange syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Grange syndrome hub →Grange syndrome is a rare condition. Also known as Grange occlusive arterial syndrome, Progressive arterial occlusive disease-hypertension-heart defects-bone fragility-brachysyndactyly syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Grange syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:79094 · OMIM 602531 · ICD-10 Q87.8 · GARD 0016697
Start by learning the basics from an authoritative source, find a specialist or center that sees Grange syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Grange syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Grange syndrome from ClinicalTrials.gov on the hub.