You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Gorlin syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Gorlin syndrome hub →Gorlin syndrome is a rare condition. Also known as Basal cell nevus syndrome, Gorlin-Goltz syndrome, NBCCS, Nevoid basal cell carcinoma syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Gorlin syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:377 · OMIM 109400, 620343 · ICD-10 C44.9 · GARD 0007166
Start by learning the basics from an authoritative source, find a specialist or center that sees Gorlin syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Gorlin syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Gorlin syndrome from ClinicalTrials.gov on the hub.