You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Gordon syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Gordon syndrome hub →Gordon syndrome is a rare condition. Also known as Camptodactyly-cleft palate-clubfoot syndrome, Distal arthrogryposis type 3, Distal arthrogryposis type IIA. Tomeko brings together the specialists, research, clinical trials, treatments and community for Gordon syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:376 · OMIM 114300 · ICD-10 Q68.8 · GARD 0002553
Start by learning the basics from an authoritative source, find a specialist or center that sees Gordon syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Gordon syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Gordon syndrome from ClinicalTrials.gov on the hub.