You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Glycogen storage disease XV, look for clinical trials, and connect with others living with it — all in one place.
Open the full Glycogen storage disease XV hub →Glycogen storage disease XV is a rare condition. Also known as GSD type 15, GSD type XV, GSD with severe cardiomyopathy due to glycogenin deficiency, Glycogen storage disease type 15, Glycogen storage disease type XV, Glycogenosis type 15, Glycogenosis type XV, Glycogenosis with severe cardiomyopathy due to glycogenin deficiency. Tomeko brings together the specialists, research, clinical trials, treatments and community for Glycogen storage disease XV so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:263297 · OMIM 613507 · ICD-10 E74.0 · GARD 0017254
Start by learning the basics from an authoritative source, find a specialist or center that sees Glycogen storage disease XV, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Glycogen storage disease XV, filtered to your area.
Tomeko shows live, recruiting studies for Glycogen storage disease XV from ClinicalTrials.gov on the hub.