You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Glomuvenous malformation, look for clinical trials, and connect with others living with it — all in one place.
Open the full Glomuvenous malformation hub →Glomuvenous malformation is a rare condition. Also known as Glomangiomatosis, Hereditary multiple glomangiomas, Multiple glomus tumors, VMGLOM, Venous malformations with glomus cells. Tomeko brings together the specialists, research, clinical trials, treatments and community for Glomuvenous malformation so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:83454 · OMIM 138000 · ICD-10 Q27.8 · GARD 0016728
Start by learning the basics from an authoritative source, find a specialist or center that sees Glomuvenous malformation, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Glomuvenous malformation, filtered to your area.
Tomeko shows live, recruiting studies for Glomuvenous malformation from ClinicalTrials.gov on the hub.